Monday, May 14, 2012

My Sweet Sweet Daisy



There is no other way to say this....so... approximately 2 weeks ago on May 3rd .......I  let Daisy go.  She lived a happy and adventurous life until the very end.....and I mean the very VERY end.   There are no words to describe the loss I feel.   Daisy was my best friend, my companion, my true nature buddy.  I knew this day was coming and even though I'd gone through this before with my other dogs.......each loss feels VERY different.

I started this blog because I wanted to share MY own personal experience as it might offer some help to someone else.  I've received several calls and emails from people who have stumbled upon this site who were searching for answers and others who simply wanted to talk to someone they felt could understand what they were going through.

With Daisy gone I can honestly say that throughout this time period I never really thought about the "end" much.  I didn't want to.  I tried to stay focused on the present moment to stay positive so Daisy and I could have as much fun together as possible.

It is true what they say about lymphoma.......it happens fast once it reaches End Stage.  Most of these dogs can appear healthy and function quite well for a period of time with chemotherapy, radiation or other treatments. Then one day they take a turn for the worse.  Then it is a matter of days. Daisy had not been responsive to chemotherapy for the past several months but she was still able to lead a physically active lifestyle and was her usual happy self.  Her lymph nodes however continued to grow .....under her jaw area, between her shoulders blades and upon a recent examination had spread throughout her abdomen (I also saw and felt them).

Over a period of 3 days Daisy very rapidly reached End Stage lymphoma.  She had increasingly become more and more restless at night, was weak, stopped eating, and panted excessively. On the 3rd day she could barely walk.  I consulted with Dr. Lurie, her oncologist, during this time period ........trying to find a way to fix it.  I spoke to Dr. Warry from the B.M.T. (Bone Marrow Transplant) department at NCSU to ask if a blood transfusion would help to "kickstart" her platelets.  It would not. The disease had progressed too rapidly.  I took her in to see Dr. Lurie.  He said that the disease had spread rapidly and that there was nothing more they could do for her.   I let her go upon his recommendation ........but I also had a "knowing" in the pit of my stomach.

I remember on the 2nd day of Daisy's rapid decline going into a canine support chat room at "pawstrong.org"  I kept asking questions like ....how do you really know if they are in pain or not? How do you know when its time to end their suffering? etc.  etc. question after question............ It finally dawned on me that the time to let them go is WHEN YOU BEGIN ASKING THOSE TYPES OF QUESTIONS.  I didn't have a need to ASK all those questions prior to this time.

Both Daisy's oncologist as well as Dr. Warry from the B.M.T at NCSU had reassured me that Daisy was not in "pain" but described it as a moderate level of "discomfort" similar to having a very bad flu... feeling lethargic and very very weak.  Daisy had difficulty getting oxygen into her lungs so it was probably moderate to severe discomfort for her.   I just wanted to fix it.  I wanted to fix HER.   I wanted to find that ONE treatment that I might have overlooked that could possibly save her.

The bottom line is that there is no actual CURE for lymphoma. It is a terminal disease.  The bone marrow transplant still holds the possibility of a cure as there are some dogs who are still alive post B.M.T.  The lymphoma vaccine also provides the hope of a cure......if caught early enough. Chemotherapy and radiation allow you to extend your dogs life......... for a period of time....but there is no actual cure.  I took responsibility as her caretaker to make the decision to release her because she could not make that decision for herself.  It is our responsibility as their caretakers to make that decision.  I think Daisy would have tried to hang on for as long as she could....... just for ME regardless of how much discomfort she experienced.

                                                                       ~

Yesterday was Mothers day........  I decided it was the perfect day to take a drive up the coast to scatter her ashes along her favorite beach spots (Haulover Beach, Hollywood Beach and Jupiter Beach).  Her spirit will always be there "frolicking" about... and that is where I will go to visit her. 

5 comments:

  1. Doreen, I am so sorry for your loss. My heart breaks for you. I know you loved Daisy so very much. When I found your blog it gave me hope and I had to follow it. Its not fair that our babies are having to be taken away from us. You did everything you possibly could, and I know Daisy knew that. I'm trying to live by your idea of living in the moment. I find it very hard. I started a blog for myself, really just a journal to help me 'cope' with my fears and put what I think on 'paper', the idea came from you. You and Daisy are my inspiration. You did everything available for her, she really couldn't of had a better mom. You two were brought together for each other. Without you she wouldn't of had such a wonderful last few months and such a strong support group. Again I am so sorry for your loss.

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  2. Thank you for your kind words Brittany. I'm sorry you and Roo are struggling with this disease. I feel honored to have inspired you to start a blog/journal. It truly is a cathartic experience. You mentioned you were finding it hard to "live in the moment" with Roo. Daisy was asymptomatic most of the time....(until the end) so it was easier because I didn't see her get sick very often. Still I can't say it wasn't an emotional roller coaster ride. At the beginning there were times when I would find myself "ruminating" on the fact that she had a "terminal" illness....which of course took me to a very sad place. I finally made a decision that I wouldn't "go there"....... telling myself that I'd have plenty of time for tears LATER........that's what kept me focused on living in the moment with Daisy.....I didn't want to waste precious time shedding tears for a dog that was still alive...and I knew I would never get this time back to spend with her. Its probably more challenging for you because it sounds like Roo gets sick after his chemotherapy treatments. I've read your blog and it sounds like you are making the most of the time you have with him. It is apparent that you love him dearly. I will continue to follow your journey. BTW ....Roo has one of the sweetest faces I've ever seen. Love, light, hugs and prayers to you both.

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  3. Doreen, I came to your blog a month after saying goodbye to my sweet, sweet Tucker. Your story of the time with Daisy very closely resembles my time with Tucker. He went for a bone marrow transplant in March 2012 but it did not work. He had t-cell and it was much too aggressive. He had a wonderful 8 months relatively unaffected--swimming all summer. We even left the pool up into September so he could do what he loved even though it was a little cold. It is amazing how fast he started to fail and we panicked to find something to save him even though we did everything medically possible. His spleen got so enlarged he couldn't walk. I miss him terribly. He was a flat-coated retriever as black as night and as soulful as you could imagine. I spoke with an animal communicator out of desperation and she told me some incredible things that put me at peace about where Tucker is right now. I hope we all can find our beloved pups again when it is our time to go. We love them so much it is never the same without them. I hope you found some way to deal with losing your beloved Daisy.

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    1. Thank you for sharing your story. My heart goes out to you and your family. Yes your story sounds very similar to mine and Daisy's. I'll bet it felt like your whole world came crashing down when the treatment didn’t work, despite the compassionate efforts of Dr. Suter, Dr. Warry and supporting staff/nurses at the Center. It sounds like you and Tucker made the most of his last 8 months together….. and what a gift to him… keeping the pool up into September :-) I wish I could have met your “soulful” little retriever. I’m glad you were able to find some peace.

      We all find peace in our own way and in our own time. Pain and loss are a certainty in life. No one is immune to it. I’ve learned that pain is temporary but suffering is optional. Suffering seems to happen when we don't ACKNOWLEDGE our pain and instead allow ourselves to BECOME the pain, clinging to it, feeling consumed by it and getting stuck there.

      I’ve lost many precious dogs in my life. Eventually the sorrow turns to gratitude & fond memories….like the ones I have of Daisy. She gave me a precious gift… a reminder that NOW is all there is…..the past is gone and the future hasn’t happened yet. We all know this (cognitively) but find it difficult to do. Because Daisy's time on earth was so limited I wanted so desperately to enjoy each and every moment with her …but early on I was distracted by fearful thoughts about the future.... and the “woulda, coulda, shoulda’s” about the past. Like when she was first diagnosed I was literally paralyzed with fear ….. and there she sat….. calmly .....watching me.......as if waiting patiently for me to…. just throw the ball ....letting me know everything is perfect just the way it is in that moment.…..that was her gift to me.

      The loss of a loved on can catapult you into a soul searching venture. It did for me. I began re-assessing what was really important in life. I began wondering what living in the present moment really meant. I discovered it was more complex than I had imagined. Most of us think of it as moving from one “pleasurable” event to the next…until it all falls apart by some inevitable catastrophe …… a medical illness, death of a loved one, financial collapse, foreclosure, natural disaster, or even retirement….basically the loss of anything valuable to us….and then what? Nothing is permanent. Everything is in a constant state of change whether we like it or not…whether we ACCEPT it or not.

      After Daisy’s death I visited friends and family on the west coast. I visited one friend in particular whom I’ve known for 25 years. We listened to healing tapes and practiced “mindful awareness.” It’s not as simple as it sounds. I would challenge anyone to try mindful awareness meditation for just 5 minutes. Soon you’ll find your attention wanders from one thing to the next…..from a thought to a feeling, an image, a sound, body sensation etc. etc. Much of it is meaningless chatter that most of us are not even aware of….getting caught up in the “content” of thought instead of just observing it AS a thought. [ Continued on next blog page}

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    2. Jon Kabat Zinn, founder of MBSR (Mindfulness Based Stress Reduction) describes the mind as a ceaseless river flowing endlessly whether we are observing it or not…..”mindful awareness” is like an invitation to sit by the rivers bank and listen to the endless bubbles, gurgles, and eddies, its voices, images and stories….. rather than be caught up in them and carried downstream.“

      For anyone who has found their way to this site, here are some books/audio/meditation tapes that have helped with the loss of Daisy. I have much appreciation for the brilliant minds and compassionate hearts of these authors: These are absolutely a gift to anyone interested in living “mindfully”:

      - “Guided Mindfulness Meditations” “Coming to our Senses” “Full Catastrophe Living” by Jon Kabat Zinn http://www.mindfulnesscds.com/author.html

      - “The Art of Presence,” “The Power of Now” “The New Earth” by Eckhart Tolle http://www.eckharttolletv.com/default-tv.aspx

      -“Mindsight” “The Mindful Brain” “The mindful therapist” “The Whole Brain Child” “Pocket Guide To Interpersonal Biology” by Daniel Siegel http://drdansiegel.com/

      - “Awakening is Real,” “The Wise Heart” by Jack Kornfield http://www.jackkornfield.com/

      - “Anatomy of Spirit “by Caroline Myss http://myss.com

      - “Integral Spirituality” “Integral Psychology” by Ken Wilber.

      - The collected works of J. Krishnamurti Vol. 1-17 http://en.wikipedia.org/wiki/Jiddu_Krishnamurti_bibliography

      -“A Course in Miracles” http://acim.org/

      P.S. I have a new Golden Retriever named “Juni” short for “Juniper.” She is the love of my life and I am grateful each and every day for the joy she brings. I train her in dog agility & canine freestyle dancing. Here is a video of a dog named “Rookie” in canine freestyle dancing with Carolyn Scott www.youtube.com/watch?v=HqbVbPvlDoM)

      I will honor Daisy’s life by accepting her gift to live mindfully each and every day.

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